The XLH Network was founded as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia.

The XLH Network is helping thousands of people around the world who are affected by or interested in XLH and related disorders of phosphate wasting. Their website provides information to people around the world with up-to-date information on diagnosis, treatment and the very latest research. XLH Network members have access to a variety of tools that help connect patients with each other, as well as with clinicians and researchers.