The Rare Bone Nurse Network is a national collaboration of paediatric bone clinical nurse specialists working across the United Kingdom. Our mission is to improve patient care in rare bone disease by utilising the voice of patients.

The group meets twice yearly at the bi-annual BPABG meeting, with regular virtual meetings in between this to share best practice, strengthen collaboration, standardise care and develop educational resources. We are committed to providing high quality, accurate information to improve patient care and experience.

If you are a UK paediatric bone specialist nurse and are interested in joining the RBNN, please contact us at info@bpabg.org, including “RBNN” in the Subject.